I want to raise awareness that you don't have donate an organ to save lives. Blood cancer patients all over the world are frantically looking for bone marrow and blood cell donors. The chances for a match are very low, but if they find one the chances of success are high. So you can understand the desperation.
The thing is, an actual bone marrow extraction is only required in 10% of all cases, most of the time you only have to donate blood cells. It's painless and pretty much non-intrusive.
Check out https://www.dkms.de/en or https://bethematch.org/ for more information about the subject. Costs for the match test are unfortunately not covered by health insurance here in Germany, but it's only 30€ or something in that order.
I'm literally getting a bone marrow transplant today to treat leukemia. I'm in the US and my donor is somewhere in Europe. I can't thank these donation networks enough -- they are saving my life.
Can confirm: this is an incredibly low-barrier-to-entry thing.
I'm a U.S. citizen, so I signed up with Be The Match. Four cheek swabs that they send you in the mail. Swab your cheeks, package them up, send them back.
I got notified that I was a preliminary match just five months after signing up. Sadly, I wasn't a full match (hopefully someone else was!) after going through the blood draw.
All in all, it cost me nothing monetarily and maybe 3 hours total between questionnaires and the blood draw when I got matched.
Why? Others are donating a whole kidney or parts of their liver etc, which is much riskier. Compared to that, taking some drugs for short time to increase blood cell production sounds tame.
I'd rather worry about the bone marrow donation. Once you sign up, you potentially have to give bone marrow or have to live with the fact that you could've saved someones life, but didn't.
I live in the US now but was born in the UK and lived there until I was almost 30. Each time I tried to give blood here in CA, I was told I was ineligible because of the possibility I was a carrier for "Mad Cow Disease".
Anyone know if that's still the case or if there is a way to get tests and cleared for donations?
I believe you can't ever get cleared. The only way to confirm mad cow is to dissect the brain, so obviously it can't be tested for in a living person. As a result, anyone with over a certain amount of risk for mad cow can never be allowed to donate.
Yup, the test is extremely easy too. Just requires a simple swab on the inside of the cheek. I know there are a decent amount of donor drives that you can find through the website that will add you to their registry
Shameless Plug: The football coach at the college I went to actually has a charity dedicated to getting more people to take the test and I think is associated with the Be The Match organization. One of his players (who now happens to be an outfielder for the Chicago Cubs http://www.chicagotribune.com/sports/baseball/cubs/ct-matt-s... ) ended up being a match and ended up missing a good chunk of the baseball season even though he was expected to be drafted by a Major league team that year. Pretty cool story
Jumping in here - I donated peripheral blood stem cells (PBSC) a couple years ago and the process was easy and incredibly rewarding. I encourage all to participate, especially if you have non-European or mixed ancestry!
Recipients are more likely to match with donors of similar ethnic backgrounds. Today, Black, Hispanic, Asian, and American Indian patients are far less likely to find a match in the registry than White patients.
If you are affiliated with the US DoD ("A member of the U.S. military, Reserve, Coast Guard, National Guard; military dependent; or DoD civilian employee") you need to sign up with https://www.salutetolife.org instead.
Registering as a bone marrow donor is particularly valuable if you're mixed race. Bone marrow transplants require a very high degree of genetic similarity, so it can be very difficult to find matches for mixed race recipients.
Do you know if they ever reject donors due to health issues? I've been rejected for blood donation before because some blood centers consider fibromyalgia an auto-immune condition. I couldn't find anything about it in the donor faq though.
They also won't accept you as a donor if you have any kind of auto-immune disease (because we still don't know how it works and if it can be transfered via blood cells or marrow), and generally, your body has to be in good shape.
I thought about donating but my doctor discouraged me and advised me to take it serious, e.g. don't lie while filling out the donation forms. Even though it probably would turn out fine someone could die because of you which is exactly the opposite of what you've signed up for.
The problem with blood donation, for me, is the time between donation.
I donate plasma twice a week, i have for years now. 880mL of plasma every donation... Whereas blood you have to wait 8 weeks between...
Not saying blood is less important, just important to understand there are options... all of it is important, and i think everyone should be donating something in their body like blood/plasma that is renewable and costs your body next to nothing to give...
I would love to donate blood, but it seems I'm too sensitive to blood. Not sure why. But there have been cases where I have passed out after giving blood tests or cutting myself. Would love to hear ideas how to overcome this.
I donated a lot when my father died. Just make sure you're not looking at the bag filling with your blood. We're programmed to think that our life is dripping out through that cord but be positive and aware that this helps someone and also regenerates your blood so it has its benefits.
Don't look and prepare mentally that you're not going to die there. I know it sounds absurd but the "fight or flight" situation kicks in and, like with panic attacks, the fear of actually dying probably leads you to pass out probably.
You never had a panic attack. When the brain overloads in such situation will take the most extreme action it can, shut you down, put you to sleep so you can't feel anything probably. It won't happen to everyone but it does to many. I've had some panic attacks 5 years ago that got me close to that point. I didn't pass out but I was right there, in all instances I ended up in the ER though.
I have a friend who's girlfriend was driving one day and the car slipped off the road going towards an electrical pillar (it didn't hit it though because my friend managed to grab the wheel). Near the collision point with that pillar his girlfriend passed out, in an instant. We laughed at that situation for years. They ended up in someone's yard, killing a poor dog in his little house.
When giving blood, you could be experiencing vasovagal syncope -- fainting due to the drop in blood pressure and / or blood sugar. That's why they always hand out high-sugar juices -- hydration and sugar help reduce those effects. There are also sometimes symptoms before passing out. Here's a good article about it:
However, that doesn't answer cuts. Does it happen on any sight of blood or only your blood?
I know a bit about this due to having researched after I gave blood the first time. Ends up the person was not very experienced and ended up drawing from muscle instead of a blood vessel. I was in for probably about 20 minutes with only half a bag before they gave up and sent me on my way. Walking from the parking lot to the office, I got lightheaded, nauseated, cold sweats, some gastrointestinal effects... But did not pass out. In my case, I think it's blood sugar related, as I had a similar reaction once while fasting.
Dude (m/f), don't drive after donating blood. Go with a friend or take public transportation. You're a risk to others, too, especially if you don't donate regularly and don't know how you'll react.
Yes, you are absolutely right. In this case, there was a mobile collection unit in the office parking lot. This is very common where I live. Sorry for the confusion.
I also had this problem and finally asked a therapist about it last year, because I was pregnant and having to do a million blood draws. He surprised me when he said the last thing you want to do is try to relax (which is of course what the nurse always tells you to do).
Instead, start tensing muscles in your body - legs, hands, wherever. This keeps the blood pumping to your brain so you don't faint.
It absolutely works. I can even watch them draw the blood now and feel fine.
That's called Vasovagal Syncope [0]. It doesn't necessarily happen because you see your own blood in a bag, but rather because of the physical implications of having blood removed from your body. Drawing slower or smaller volumes can potentially help mitigating this problem. I think it can also be seen as an indicator for other medical problems regarding your circulatory system, so it might be worth investigating further.
Humanity at its best: Your son gets killed in a foreign country and, rather than being angry with the people of that country for producing some murderers, you actually help seven other families with organs from your now dead son. And, the family (or is it just the father) still come back to the same country to celebrate with the children who received the donated organs. I salute that family.
It's interesting too, because in many countries, there's VERY strict patient confidentiality that would prevent the family of the donor from ever meeting recipients.
If both parties agree to meet, doctors can enable that, even in countries with strong patient protection laws. People in the US do this sometimes, too.
>I have a friend who is a doctor. I have another friend trying to donate a kidney to a stranger. My doctor friend said that's a terrible idea for you personally because doctors have a phrase "nobody should die with 2 kidneys." What it means is that a lot of extreme medicines they might try if you're really in trouble have a high risk to kidneys. In other words, you need a buffer kidney in case of a need for risky medication, as that is very common.
Just my personal experience.
Donating has its risks, after all there's a reason we have two, when only one does the job. I know a person who donated one kidney to his son and was told to essentially change his lifestyle at least when it came to physical work.
Yes it is. It certainly helps ameliorate the long-term risks of complications associated with becoming a living kidney donor. While those risks aren't massive, they're certainly enough to make people pause. Anything that can lessen those fears can only help.
There was a story in Eastern Europe just recently: a 20-year-old guy desperately needed money and sold his kidney for $15k so that he could marry his girlfriend. He died a few weeks later.
My own son had his eye saved by an organ donor when he was an infant. We live in Canada which is still opt in so someone made the decision that they wanted to give up a part of themselves after they died. For that I am grateful.
That's inspiring. If you don't mind divulging more details, can you tell us how your son's eye was saved? Do you mean they transplanted an entire eye, or was there a critical part of the eye donated by someone else?
Also interested if your son has heterochromia as a result. I'd imagine that's the case if there was substantial change to the original iris?
They transplanted tissue on top of the eye as part of implanting an Ahmed valve. My son has primary congenital glaucoma. There is no obvious signs like heterochromia, the entire transplant and most of the valve is between his eye muscles.
I'm in Quebec and it's also opt in here, probably is pancanadian setup.
Do you know why is opt in and not opt out like in other countries. What's the thing blocking this? Do you know if there's an organization making pressure to make it opt out?
I'm asking you because I'm guessing you're familiar with transplant topics.
The system in Canada is a bit of a hodge podge managed by each province independently, and in some cases with private partnerships. The David Foster foundation has been the main force behind introducing opt out donation in Canada but I haven't seen any traction.
Wow, that's amazing that they were so willing to try and help others. However, reading this 7 days before I take my 4 year old and twin 1 year olds to Italy was not the best timing on my part.
Don't be scared: homicide and crime rates in Italy are very low, especially if compared to the United States (assuming that's where you're coming from).
The problem with the Mafias is not so much the killings, but the impoverishment and corrosion of everything they control.
The article doesn't portray a realistic view of crime rates in Italy - they say "violent death is commonplace", but I don't think that's ever been true, and it certainly isn't now.
Be careful, as always, but Italy isn't an especially dangerous place. Some regions have higher crime rates than others, but even then, I wouldn't worry too much about it.
> they say "violent death is commonplace", but I don't think that's ever been true
The Greens happened to be in a bad place at a very bad time - late-80s/early-90s saw big changes in organized crime and political structures, with all the trouble that sourt of situation will inevitably bring. Things are nowhere as tense today. Unless you specifically head for the ghetto, the worst that can happen as a tourist is overpaying for taxis.
Most of the killings in Italy happen in the context of organized crime, and they almost never make erorrs, this was a very odd situation. In general Italy is a very safe place if compared to London or most parts of the US.
Just stay (sadly) away from Sicilia, Campania, Calabria, Puglia.
Edit to avoid misinterpretation and backlash: those are the 4 regions (out of 20) where the Mafias (Cosa Nostra, 'Ndrangheta, Camorra, Sacra Corona Unita) kill the most.
If he comes from anywhere other than the EU (and even then, depends where), Italy, or even Sicily in particular, is much safer regarding murder rates. Italy is super safe. If you or him wants more details, numbers etc ... They're all readily available, but even a quick glance at these two maps tells the story:
So yes, even in the few parts of Italy that aren't scoring perfect, the murder rate is as dangerous as visiting the french south east coast, or visiting Scotland, or even north Germany. Not exactly hell of earth.
You are still much more likely to die in a traffic accident in these regions than get murdered. By most standards (even Western European ones) these regions are still very safe, so I don't see any reasons why you should avoid them. Furthermore, Italian mafia, unlike some movies like you to believe, usually don't kill for fun - most of the related murders are targeted killings of rivals, witnesses, debtors, investigators etc.
Killing police officers, wives of judges, priests who speak up agains the Mafia, torturing the 11-year old son of a pentito for two years... Charming. This romanticized view really does make me angry. The Mafia are scum, they are lowlife despicable murderers. They're unreservedly wretchedly scum. They haven't a a moral code, they bring misery to others for their own benefit, and as such they aren't above any other scumbag criminal (like the 14-yo gangbanger you deride).
The Mafia are scum, they are lowlife despicable murderers. They're unreservedly wretchedly scum.
I agree. You should post this to the person that praised them.
The post I replied suggested that Italy is not safe because of Mafia. Yeah, Salvatore Riina did go into terror to force the state to settle some 20+ years ago, but how many people not related to their business were killed vs mafiosi? Things happen. People fall out of their beds too. USA and other countries have their own problems.
Yeah, they only target each other or rebellious shop-keepers and while targeting those targets they shoot in broad daylight on the streets, in shops, and so on.
Worth noting is that, although the USA does have a crime epidemic, the typical murder doesn't take the form of random shooting or a mugging gone wrong. Think young men who already know each other shooting each other.
What a well written article. Half way through reading it, my eyes started to swell up with tears ... the image of the father, who was driving the car, turning around to see his son, just sleeping moments before, now laying there dead with a bullet through his head.
I had the opportunity to see Nicholas's parents speak a few years ago, and their talk convinced me to opt in as an organ donor. When I first got my driver's license, I had opted out of more or less out of spite— the CA DMV's form seemed intentionally misleading, which bothered me. I suppose it still bothers me, but it changed my mind to hear firsthand about the impact that my body could have when I'm done with it.
I've felt the same way all too often in the past. In my experience, gratitude is the best cure. Being grateful for hot showers, for tasty food, for a good night's sleep, for anything good or enjoyable really, these have really helped me to change my perspective so that I do enjoy life, I recommend trying it to anyone feeling that way.
The thing is, an actual bone marrow extraction is only required in 10% of all cases, most of the time you only have to donate blood cells. It's painless and pretty much non-intrusive.
Check out https://www.dkms.de/en or https://bethematch.org/ for more information about the subject. Costs for the match test are unfortunately not covered by health insurance here in Germany, but it's only 30€ or something in that order.
If you ever wanted to save a life, get tested.