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My brother made it through CAR-T but ended up succumbing to the effects of a massive tumor that did not respond to the treatment. Essentially all the soft spots and flare ups in his bones went away, but a hard tumor in his abdomen survived. It grew uncontrolled until his kidneys failed.

Part of his treatment was “reseting” his immune system with a leukemia regiment to give the CAR-T a fighting chance to augment the native immune system. I don’t think this new CAR-T would affect the treatment plan, especially since CAR-T is generally prescribed after other treatments fail. CAR-T is a little spooky because sometimes it just kills the patient and they don’t know specifically why.

The big win here is that in January of this year they told my brother there was nothing they could do to treat the hard tumor. Maybe next January that conversation goes differently.




Sorry to hear about your brother passing. Hopefully this gives options in future, as you said. Thanks for sharing




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