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The Ones We Sent Away (theatlantic.com)
106 points by fortran77 8 months ago | hide | past | favorite | 70 comments



I knew a lady who was born with very complex spina bifida. Her parents were wealthy and had very manicured lives. They signed her over to an institution at birth. She grew up with people with profound mental retardation. She receive no education. At 20 she was found by an uncle who always suspected something had happened that was not being disclosed. He began to visit her and teach her to read. He explained that she had a right to leave and helped her start her life. In a couple of years she was able to enter University and graduated despite the lack of any education before 20. She developed a friendship with a lady with CP and they were housemates when I met them. She died of pneumonia several years ago due to constricted lung size. She was a lovely friend.


Thank you for sharing this nice story. What an amazing uncle to find her and help her like that.


I worked in a facility like this for the first 5 years of my career

Many of the clients are very aware they’ve been abandoned. Especially so because there are a select few who do get regular family visits.

It was crushingly depressing to work holidays and have the regular crew of kids that never went home or had visitors. If you work with adults it was significantly worse, many of them had no visitors for literal decades

Also those places pay terribly but I’m sure that shocks no one. When I worked there it was at one of the places known for paying very well in the industry and they payed 13/hr for children and 9/hr for adults (2010). AFAIK the rates are only 2-3 dollars more an hour now 13 years later


Can you tell me what these facilities are called? I volunteer on all holidays and I’d be glad to keep folks company or help out the staff.


While that is noble and appreciated unfortunately many facilities will turn you away because of the liability involved.

The unfortunate reality of working with populations that include severe developmental and intellectual disability, traumatic brain injury, dementia, mood disorder, etc is that impulse control can be severely impaired. This can lead to extreme and sudden violence that can catch you quite off guard if you are not prepared for it (and even if you are) and cause significant injury. The staff turnover rate and workers comp claims were crazy high as a result and part of the cause of the low pay (although there were many other major factors involved). It can be quite dangerous. Although to be clear this is absolutely not to suggest that someone who is mentally ill or disabled is inherently dangerous of course; this is a small subset of individuals whose functioning was impaired in such a way that made the likelihood of violent behavior significantly more likely. Often it was not intentional violence, more like a childish tantrum except with the body of an adolescent or young adult that could do serious damage. Although occasionally it was serious targeted violence too. I personally still have a permanent neck and spinal injury a decade later as well as a ton of scars from bite marks. I saw much worse. It’s not just some mild annoyance shit, it’s life changing ruin your body kind of injuries.

With that serious caveat the other issue is that there’s not really a “standard” name for these programs. They vary by level of care, by provider, by state, and sometimes even by county. But some examples from around me would be residential schools, residential treatment facilities, long term structured residences, etc. more generic terms are things like “group homes” and they’re all considered an extension of psychiatric inpatient treatment facilities.

Also fwiw depending on your state/locale there may be volunteer opportunities that offer training to help alleviate the above issues. At another program I consulted with later in my career they had volunteers who would socialize in this capacity. It was a really nice program; they would essentially go through a condensed version of the staff training. They wouldn’t do anything like restraints or things like that but they would teach them evasive maneuvers, de escalation techniques, and then train them on the clients a bit with staff before letting them do more independent socialization. Was really nice for the clients. The downside was the really difficult clients who had extreme behavioral issues tended to not get the service and they also tended to be the clients who got visited the least. But that’s the difficulty of the issue; when your behavior gets to that point you kind of need specially trained people around you at all times for safety.

And the thing is populations change the frequency of this a bit but not as much as you’d think. I’ve spent most of my career doing pediatric stuff, child and adolescent, with some stints doing adult work. All of those populations can have these issues obviously but it does tend to calm a bit with age in my experience. However, I have peers who focus in gerontology and dementia and have similar issues because of the impulse control issues that can come with that diagnosis.

I hope this doesn’t scare you off. I only hope to prepare you for the realities of the situation. I would hate to just post “oh yeah go volunteer” and have some kid bite you and have it get infected (human bites get infected super easily if they break skin, mouths are nasty!) or have your hair pulled and get your neck all messed up. You can do this and be safe if you are prepared and trained, you don’t need to be hypervigilant (that can actually make things worse), but you do need to be aware of your surroundings and know how to position yourself safely. That all said my suggestion would be to find a residential facility near you and contact them directly to see if they have any volunteer opportunities. If they just invite you they most likely have a population where none of this is a concern and you are good to go. If they offer training and you’re up to it go for it, you’ll learn a lot about safe positioning and de escalation techniques. If they ignore you I’m sorry, a lot of these places are overwhelmed and constantly short staffed unfortunately


My dad had an Uncle Charles (probably born around 1910) who didn't live with the family. He was what was called a "spastic" -- probably cerebral palsy. The family (out in the bush) couldn't look after him so he was committed to an institution.

My dad visited him as a kid. Uncle Charles had never been taught to read or write but he was an excellent chess player and (like his brother, my grandfather) could do complex arithmetic in his head. What a waste of a life for him!

On my grandmother's side, her youngest sister Jean wasn't allowed to marry because her job was to look after the parents when they got old. And when they passed on she had no skills as she hadn't been able to acquire any. What a waste of a life for her!

Most of 20th century Australia was tough.


Ireland had a variant of this where women who got inconveniently pregnant were sent away to forced labour institutions: https://en.wikipedia.org/wiki/Magdalene_Laundries_in_Ireland

If women died from the conditions, they could be buried in unmarked graves:

> In Dublin in 1993, the Sisters of Our Lady of Charity – owners and operators of the laundry in High Park, Drumcondra – had lost money in share dealings on the stock exchange; to cover their losses, they sold part of the land in their convent to a property developer. This led to the discovery of 133 unmarked graves. The Sisters arranged to have the remains cremated and reburied in a mass grave at Glasnevin Cemetery, splitting the cost of the reburial with the developer who had bought the land. It later transpired that there were 22 more corpses than the sisters had applied for permission to exhume, and death certificates existed for only 75 of the original 133, despite it being a criminal offence to fail to register a death that occurs on one's premises.[3] In all, 155 corpses were exhumed, and cremated

There was also unmarked graves for babies: https://www.bbc.co.uk/news/world-europe-60464447

(see also institutions in both Australia, Canada and possibly New Zealand for forcibly removing children from certain ethnic minorties, known as "residential schools")


I know a guy with CP, who is quite rich. The thing about CP, is that it usually only affects the body (sometimes, with deadly results), but the mind is often quite sharp.

This guy was (and still is) a serial entrepreneur. Really sharp. I would not be surprised to find out that he has used his visible handicap to lull people into thinking he was easy meat.


Eric S. Raymond has mild cerebral palsy. Both he and his doctor hypothesize that in CP, like autism, the same neural miswiring that gives rise to the condition can, in some cases, also bestow greater insight or intelligence.


I know people to this day that didn't leave home and are supported by the state to care for parents who can't look after themselves, because they feel guilty about abandoning them, and don't have any skills. When their parents die they will most likely be unable to find work or integrate with society.


My great-aunt was the family butler. Her parents designated her as the caretaker, and thats what she did her entire life. No marrying, no job, no nothing.

She's spent the last 20 years of her life living completely alone. She's the last one alive from her generation. Its a sad story.


>Most of 20th century Australia was tough.

White Stolen Generation here, checking in.

Can't stand the place, personally.


Yeah, being a wog kid during White Australia was pretty bad, though of course much worse for my mum who was a woman and one of those dangerous types those laws were trying to keep out.


My Mum was 17 when she had me, my father was an asshole who left her standing at the altar, but the one entity that screwed my Mum and me over, more than any other, was our own government ..


What a story. I got to the end a complete, sobbing wreck. To send your own children away to abominable, putrid institutions at the advice of doctors is something I can't even imagine. And it really wasn't that long ago.


Definitely. I like to play a game sometimes... more or less based on the idea that bloodletting and rectal feeding and wound probing were medical "best practices" of the past and now seem so obviously ludicrous to us now. So I like to look at something that I think is obvious, some "best practice of our time", and wonder how it might in 100 or 150 years suddenly seem totally ludicrous to posterity with the revelation of some knowledge K where "oh now everyone knows K, how silly everyone was before they knew K."

K=neuroplasticity is an emerging case of this phenomenon for the more recent history, I think the strength of the evidence is high there.

HN has also entertained in its top ranking some articles from Slime Mold Time Mold hypothesizing a K="what if the obesity epidemic has nothing to do with calories in vs calories out, and actually there is some toxin which the body has to sequester in subcutaneous fat and that's why everyone's getting obese" -- that would be a potential modern example, although I don't think that blog makes a very good case for it. (Lustig makes a better case on this front for K="our modern Western diet removes liver protection and starves our gut microbiomes" and I think you could make an even better case that K="the dangers of chronic low-level whole-body inflammation", with Lustig only gesturing at one part of that broader problem maybe?)

A major theoretical discovery of K="computers can't do XYZ" would be another such thing for all of us who in the modern world chase these fads about computers reinventing finance or art or the modern economy. You'd have people in the year 2100 saying "can you believe only 75 years ago, everyone would just believe that computers were magically going to fix X and then they wouldn't and everyone would suddenly believe they would now fix Y and then they wouldn't and then Z and they wouldn't and and and... straight faced rationalist businesspeople acting like 'Tech-Jesus is coming' on August 1st, oh sorry it's September 1st, sorry -- October 1st? November? Maybe in the coming year? well SURELY this decade."


> "what if the obesity epidemic has nothing to do with calories in vs calories out, and actually there is some toxin which the body has to sequester in subcutaneous fat and that's why everyone's getting obese"

Everyone loses weight on a caloric deficit. And "doubly labeled water" experiments show that people vastly underestimate how many calories they actually eat each day.

See this often cited paper: https://www.nejm.org/doi/full/10.1056/NEJM199212313272701

In a test of people who believed themselves to be diet resistant, every single subject lied about how much they ate when asked to self report.

> The failure of some obese subjects to lose weight while eating a diet they report as low in calories is due to an energy intake substantially higher than reported and an overestimation of physical activity, not to an abnormality in thermogenesis.


I think this means that obese people have something wrong where they are prevented from accurately gauging portion sizes. I’m not talking like they’re stupid. I’m talking like something is wrong with their bodies and the inner satiety mechanism is broken. Counting calories sounds insane to me as a thin person. I’m not counting the calories of a fucking croissant I had for breakfast today, I just know I really preferred a lighter lunch! And I don’t gain noticeable weight without giving a crap about it, just eating what my body says fulfills me keeps me at healthy weight.

In my opinion the fact ozempic, which has nothing to do with calorie consumption or calorie counting but instead is a hormone working on satiety, tells me somethings wrong with the hormones of fat people. And I wouldn’t begrudge a fat person they’re overeating any more than I would begrudge a hyperthyroidic person their thinness!


> I’m not counting the calories of a fucking croissant I had for breakfast today

A croissant is very calorific


Hence the lighter lunch


True but also I don’t agree that he automatically chose a lighter lunch intuitively based on the croissant. A croissant is calorific but not filling


When asked to objectively measure their food and keep a log, fat people will lie about it, as revealed in "doubly labeled water" studies. Read the study I linked.


Yes, something is sick with fat people that’s causing them to do that. Anorexic people exaggerate how fat they are and how much (how little) they eat, and that’s clearly some kind of illness that needs medical intervention and medication as needed to get them proper. Same for fat people, I think fat people have something wrong with them where the whole process of eat food -> feel sated is off. If everything I ate felt like half the portion is actually was I’d also be totally fucked up in how I understood my portion sizes too and would probably inadvertently lie on “objective” measures too!

Like I don’t know how much a portion of chicken is. But damn if I ate a chicken leg, and I feel like I ate nothing, I’d be sorely tempted to argue I didn’t have a full portion of protein… because it doesn’t feel like I did, in my body. I think that’s what’s happening to fat people. Otherwise drugs like ozempic wouldn’t be working like they do— the fat person doesn’t become suddenly honest on some dumb journal and suddenly the pounds come off! They just actually feel full when they should like normal people for once so their bodies are getting to normal people sizes.


> I think fat people have something wrong with them where the whole process of eat food -> feel sated is off.

This isn't something that's wrong with fat people, it's something wrong with the food environment they're in. 75 years ago your idea would have some intrinsic plausibility, as only a very small number of people had obesity. Now, in the United States, we're at a point where ~40% of adults have obesity. The explanation almost certainly lies with changes in the food environment, instead of with a huge portion of people catching an unknown disease that causes them to not know how much they're eating.

That's because in fact we do know about changes to food environment that could cause this. Since roughly the 1970s we've switched to foods that are more calorie-dense and less nutritious because they have become cheaper to produce. The relative cost of soft drinks and other sugary goods has increased much less than the cost of fresh vegetables, and in fact the industry has higher profits on these foods. I bought two liters of sugary soda for $1 the other day, that's a common offer at a grocery store near me.

If you drill down to how this is being accomplished, you'll notice that the rates of corn and soy production per person have vastly increased over the last 50 years. That's not because people are eating more tofu (which would be healthy), it's because (a) they're both used as additives or sweeteners (corn syrup), and (b) they're used as feed for animals who get turned into cheap meat at fast food restaurants. The US heavily subsidizes these crops - in fact they make up close to half of US farm land. As a result, the same (genetic) individual would almost certainly experience a much worse food environment today than in 1960.

People who aren't affected by this are those who are either (a) genetically blessed, and would hardly gain weight in any environment, or (b) are socially blessed, in that they are wealthier, live in places with a strong culture of exercise, and/or have easy access to nutritious fresh vegetables.


> People who aren't affected by this are those who are either (a) genetically blessed, and would hardly gain weight in any environment, or (b) are socially blessed, in that they are wealthier, live in places with a strong culture of exercise, and/or have easy access to nutritious fresh vegetables.

or c) are disciplined enough to count their calories and stopping when they hit 2,000 kCal/day or so.


Yeah, that obviously works for a small number of people. I'm talking about the large scale demographic changes though - they're clearly the result of changes in food availability in one's environment. In an environment like that seen in most of America, the majority of people are going to be fat. You don't solve that problem by emphasizing personal responsibility, even if it can in theory work for some individuals.


The actual Slime Mold Time Mold analysis is more nuanced than the previous characterization. Yes, you'll lose weight if you run a caloric deficit; the SMTM argument is that something is messing with what they call the "lipostat", which regulates how much your body thinks you should be eating. So when your body is yelling at you that you're starving (even though you aren't), it's very hard not to overeat, because hunger is right there at the bottom of the Maslow pyramid and it takes inordinate willpower to consistently ignore it.

http://achemicalhunger.com/


For some real life examples see the "Secret Eaters" TV series. When people claim that they gain weight despite not eating much they are lying or delusional.

https://en.wikipedia.org/wiki/Secret_Eaters?wprov=sfla1

I do understand that it can be challenging for many people to reduce their energy intake.


Thanks for the recommendation, I'm watching the first episode on YouTube: https://m.youtube.com/watch?v=bYJrC3RTtgQ


I've seen the show. There's so much denial. Even here at Hacker News, suggesting that fat people eat too much food gets you downvoted and flagged.


"You know, if we starve people, they lose weight. Obviously it's just self control."

"Yeah. Weird. Well, guess I'll go have a donut or whatever and think it over. It's a mystery why they aren't just thin like us, must be a personal failing."


"Starving?" Hardly.


Point went right by you.

Most people do not count calories and calorie counts aren’t accurate anyway. The people sitting around counting calories because they have to are afflicted with the same thing that obese people are, they’re just putting in. A bunch of effort to manage it (or more likely actually aren’t).

The issue you are missing is that the real question is not “can we create a totally artificial situation where one of the outcomes is managed” but instead “why isn’t the system that manages this in healthy people working?”

In the counting calories example, it’s like saying the answer to diabetes is an insulin pump. People who d think this way are missing the point and basically are engaging in the shallowest of thought.


Just to be clear, I am trained as a physicist and I am not criticizing the thermodynamics as incorrect but rather insufficient.

It is also incorrect, which is to say that there is only a vague relationship between the kilocalories reported on the side of the box and the actual marginal energy absorbed into your body. This is due to multiple factors. The most basic is measurement methodology: “count up the carbs in grams and multiply by 4 because this one ancient paper claimed that was the right fudge factor to average all carbohydrates with”; then there is the reality that the carbs described as “dietary fiber” on the label should never have been counted in the first place; add to this that the fudge factor for protein is also 4 kcal/gr even though it is known that proteins require twice the energy input from your body to be metabolized. If you're a physicist you're hoping for very clean simple measurements, “we put this into a calorimeter and burned it, or maybe we let some bacteria rot the thing in a sealed jar and monitored the oxygen in there” or something. The nutrition facts are nothing of the sort! (Related: the scale llliiieeesss, it lies, liar liar pants on fire how it lies.)

However the bigger problem is that it is insufficient. For instance if you are worried about health outcomes, like diabetes risks, it turns out that calories in minus calories out doesn't predict those well. Both Omega-3 fats and trans fats are given the same fudge factor of 9 kcal/gr, but one is significantly less healthy than the other.

It's not even terribly helpful to understand the full context of weight gain. Did you know that before our species grew up in Africa, our ape ancestors actually grew up in Europe? During this process they lost the ability to make an enzyme called uricase, which helps most other mammals eliminate a waste product called uric acid from the body. The loss of this enzyme is usually chalked up to, “those apes needed to put on a lot of weight really fast at harvest time before the winter came up”—google «uricase evolution» to learn more. So we actually have a hardwired tendency which most mammals do not have, to consume fructose and not consciously register those kilocalories as satiety signal, and instead we pack on those kilocalories as fat because of our artificially high uric acid levels. Wild stuff.

The physics curriculum does touch on this but in a strange place: it's the courses where we teach kids to analyze circuits made with nonlinear components like op-amps and transistors. So there's the thermodynamic fact of calories in, calories out... but it also comes with a sales pitch which is trying to provide a simple answer that would work for a linear system, “just perturb this input a little bit and you will get the corresponding output.” But nonlinear systems don't work that way!


The thing about CICO is that it's not a very good scientific model for obesity because it says nothing about hunger or satiety, but tracking calories is useful for ordinary people looking to control their food intake, so it sticks around.

CICO doesn't have any opinion on the relative satiation offered by sugars vs proteins, or bread vs potatoes, but it turns one's diet into a marketplace for satiation, which does teach which foods are the best "value" per kcal (even if a kcal is itself very inaccurate).

Maybe we'll see it as a dated but situationally valid tool, like leeches or "Red sky at night, shepard's delight".


Yeah I am inclined to agree. The “calorie counting fad diet,” such as it is, is like other fad diets where it does have good short-term results, and it can have good long-term results for the people who really stick with it: as you say, you can get a sense for a healthier rhythm.

But remember this was a thread about a game where you think about these “K factors” that make us laugh at history, and imagining ourselves being laughed at and what sort of K-factor could that be. When I play this game, it's not really truthfinding, it's fun because it's kind of a constructive way to direct a conspiracy-theory impulse that wants to deny a mainstream view by latching on to all of these little details. By declaring myself as the sheeple up-front, the end place is always Socrates’ “well, at least I know that I don't know!”

In that vein, it is fun to think about SMTM’s thesis or, say, K=“obese people literally have a hormonal imbalance H which makes them feel like shit, and them feeling like shit is why they eat and don't exercise, and these people in the past just thought they would cure the problem by making obese people feel EVEN MORE like shit and the less it worked the more goofy shit they tried!”

It's not that this is something I know to be correct, it's not. But if this became the mainstream scientific view 100 years down the line, they would laugh at me trying to do a smoothie cleanse and drinking kale-ginger-cinnamon grossness, “they didn't know that they just needed more lycopene hahaha that green glass is the wrong color!!” and it's fun to imagine yourself as ridiculous. “Well shit, my conspiratorial instincts have generated an alternative explanation to my preferred one and I don't know what is true, haha, see me walking around like some smarty pants knowing nothing.”


Mental health care is still in the dark ages and the medicine we have are mostly crappy. I just got off SSRIs - the most prescribed mental health medication. It messes with your whole body since serotonin has hundreds of different uses in the body. And we don’t know why it works! It’s basically bloodletting or eating the village healers herbs


Indeed, I've seen multiple people end up with their lives completely and utterly detailed, as well as wrecking their family and fiends (yours truly included) and a result of such prescriptions. I don't understand how this goes totally ignored by the public at large.


Same here. SSRI -> different SSRI -> benzos -> antipsychotics. With some overlap.

Finally off of everything and it was fucking brutal. My life is a pale shadow of what it used to be. Relationships and finances burned to the ground.

Engaging with the mental healthcare system was one of the worst decisions of my life.


SSRIs and other anti-depression medication are a lottery. There often isn't a good rationale for picking one over another. Many people get great benefits; some people have to go through trying several drugs to get benefits; a few get dramatically bad side effects.


There’s genetic testing now that can help us avoid some of these problems.


> A major theoretical discovery of K="computers can't do XYZ" would be another such thing for all of us who in the modern world chase these fads about computers reinventing finance or art or the modern economy. You'd have people in the year 2100 saying "can you believe only 75 years ago, everyone would just believe that computers were magically going to fix X and then they wouldn't and everyone would suddenly believe they would now fix Y and then they wouldn't and then Z and they wouldn't and and and... straight faced rationalist businesspeople acting like 'Tech-Jesus is coming' on August 1st, oh sorry it's September 1st, sorry -- October 1st? November? Maybe in the coming year? well SURELY this decade."

This might be a higher-level thing that you mean given that I'm not sure it's something "provable" or "disprovable", but I'm constantly amazed how incredulous people are that I don't expect any car to be fully self-driving (like in the sense that there wouldn't even need to be a steering wheel and someone without a license could ride in it alone) any time in the next few decades. To be clear, I'm not claiming that it's something that _definitely_ won't happen, but I don't think it's super likely, whereas the vast majority of people I share this opinion with (even people with similarly high levels of technical expertise) seem to think that it's almost a foregone conclusion that this will be solved within maybe 30 years.


Have you experienced any of the current driverless taxi services?

Personally i see the current limits to rollout as ones of hardware cost, but this is steadily declining.


There are only 3 cities in the entire US with generally available driverless taxis. All three of which are in sunny areas with generally no real inclement weather.

At this point, driverless taxis are more science fiction than reality for a supermajority of Americans, let alone the rest of the world.

Meanwhile up in Canada, I'm still struggling with the fact that google has completely mislabeled two of the streets that touch my corner lot, and invented a through street that has never existed on my neighbors property. All of this is information that I have submitted a correction to, as well as being available through our excellent public GIS system.

The existence of these sorts of ambiguities in the map, and in the real world means that driverless taxis will be doing exactly what the poor pizza guy does periodically and wandering down my dead end road thinking they are on a completely different street. Luckily the pizza guy has the ability to knock on my door and get directions, while a driverless car will just... turn on its flashers and block the road as far as I can tell.

When driverless cars can operate in Salt Lake City, a city that is incredibly tech friendly, low regulation, car centric, but with genuinely bad weather I will be impressed. In the meantime I would settle for more frequent bus service.


from people who work in those companies:

those cars could be in every city and they’d run great (except snow. snow is tough, rain not so much)

but why aren’t driverless cars there?

It’s been decided you want a perfect track record, as close to flawless - to appease regulation bodies.

regulation is what kills and regulation is the biggest fear. The cars and tech are always getting better, the ‘slowness’ is deliberate, the bet is on the future.


According to the DOT over 70% of US roads are in areas that receive snowfall. (https://ops.fhwa.dot.gov/weather/weather_events/snow_ice.htm)

The inability to operate in conditions where people are most likely to not be able to use active transportation seems like a pretty major flaw.


> It’s been decided you want a perfect track record, as close to flawless - to appease regulation bodies.

This is why I feel China will be the first to have unlimited self-driving. They would be able to treat self-driving cars the way that we treat trains: liability on the person hit by the train, so long as the train was functioning properly.


Maybe the Chinese self-driving cars will be programmed to kill any pedestrians they accidentally hit. Apparently it's cheaper that way.

https://slate.com/news-and-politics/2015/09/why-drivers-in-c...


People who work there will of course claim that. Maybe they should demonstrate it.


> All three of which are in sunny areas with generally no real inclement weather.

This isn't an accurate description of SF, but more importantly, the sun doesn't come out at night.


In terms of inclement weather for driving purposes, SF is more similar to Austin than say, Seattle.

My point wasn't that sunshine specifically helps, but that the complete lack of snow, ice and other roadway altering weather conditions is a serious asterisk that needs to be solved before this technology can be moved out of Beta for most of the US.

Self_driving cars seemingly can't handle snowy conditions. 70% of the roads in the US receive at least five inches of snow per year. (https://ops.fhwa.dot.gov/weather/weather_events/snow_ice.htm)


Yes they may not be ready for this decade, but the arguments against remind me of those that said nobody would ever have a computer in their home. Even some stupid connected lightbulb have more computing power than some of the machines at that time...

Don't trust anybody that believe they can predict the future.


>more or less based on the idea that bloodletting and rectal feeding and wound probing were medical "best practices" of the past and now seem so obviously ludicrous to us now

I often remind myself that the Australian aboriginal people, the previous members of what was once a fantastic civilisation, had a sense of anti-bacterial properties of plants and things, and often treated their frail and ill in interesting ways which we, 'modern' Europeans, misinterpreted as "primitive hysteria", because everyone know: 'miasma theory was real, whereas the primitives are just cooking themselves'.

So much life lost to those who always, always know best and never question themselves, really...


To go off on tangent, if slime mold theory were true it would be possible to cure obesity by just switching to healthy, non-processed foods. i tried this in my own weight loss journey, and way easier said than done. CICO means you can get fat with anything. Thank god for new weight loss drugs . It took a century to get to this point and a century to develop these drugs...go figure.


slime mold made most of his fat theory up and got shot down doing poor analysis. He’s a well meaning charlatan but a charlatan nonetheless.

skip his diet ideas. He’d tell you your baseball team lost because the humidity was too high when in actuality half the team is out sick with the flu. He ignores basic obvious reasons. Always a zebra when he thinks it’s never a horse…


Cancer treatment is progressing quite rapidly.

I like to think in 40 years or so that people will look back on radiation and chemo like bloodletting.

Chemo and radiation - at least 10-ish years ago - were pretty close to straight up killing yourself...


Nah, I do get thy people want to shift blame away from their failings to control food intake and mental weaknesses thats literally in front of them - I see it often in peers struggling and failing with some aspect of life, but obesity is fully self-inflicted.

As somebody currently used to mediterranean/french cuisine, and seeing what typical american eats and drinks, and how much, its definitely this. Plus idiotic car-first culture, compare it to how say Amsterdam looks like. And compare how local people on streets look like.

HFCS, hectoliters of sugary drinks, pizzas and other fast food in quantities beyond ridiculous. Obviously bad diet messes up your gut biome, which adds to bad stuff happening but is not the primary source. More stressful lives don't help but same applies.


it's horrible,yes.

in a similar vein sending your own children away to abominable, putrid institutions at the advice of pastors for being LGBT+ is something still a thing in some.circles.

it's beyond me how such doctors and pastors did and do get away with that inhuman cruel "advice"


My grand parents refused to sent my severely autistic aunt to such an institution. In 1960 Germany, a Country without mentally handicapped due to the euthanasia programs a few years before, this decision ruind their lives.

The social pressure to commit your child to such institutions was very strong in addition doctors told them that it would be for the benefit of the child and they were acting selfish.

We need to be careful when passing judgement on those who did listen to why society told them.




Site is down for me right now


The Kennedy family, and the Royal family both have this in their past I believe.

https://en.wikipedia.org/wiki/Rosemary_Kennedy

https://en.wikipedia.org/wiki/Nerissa_and_Katherine_Bowes-Ly...


Rosemary Kennedy is an especially horrendous example. She was not at all disabled but was having behavioural issues (maybe due to depression) and they arranged for her to have a lobotomy which was the snake-oil-du-jour and it went terribly wrong (though one wonders how a lobotomy can go right) leaving her in a most dreadful state.


>the most commonly cited rationale for institutionalization in those years was

>that neurotypical siblings would suffer—from shame, from attention starvation—

>if their disabled siblings were kept at home.

There is alternative perspective of "Young Carers" or "きょうだい児" in Japanese.

https://en.wikipedia.org/wiki/Young_carer

I don't think it was a easy choice then, or easy choice now.

Seems to be a relevant subreddit. https://www.reddit.com/r/siblingsupport


Here we have an interesting pattern where the childhood is actually a brittle thing:

If you have a good childhood you grow up into an well integrated adult with no issues. However, if you are having a bad childhood, not only you have the process disrupted for you but it also cascades into your family, in this case siblings. That's because the childhood is so social, and it is often the bad kind.

Many of non-neurotypical (or even physically disabled) children could grow up into integrated adults, it would just take somewhat more time. However, they often don't have access to that time as they are isolated and sidelined by the social structure.

Adult don't care about each other or meddle in each other's affairs, but children would. That's often deleterious.


Boy, this brings up a lot of complicated feelings for me.

Not only has my family had some of this, I know of many, many others.


In the UK there were asylums for "imbeciles" (the term for people with learning difficulties). Although they no longer exist, there is a plot of land near me which cannot be built on because it's essentially an unmarked, mass grave for patients of the asylum. Terribly sad.


[flagged]


Nope, now stop thread crapping please.


Sorry, I just had to know. I was feeling a bit involuntarily solipsistic lately for some reason




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