Get your DNA sequenced or checked by a private company in Canada where they don't share this information. You will pay much more but you lessen the risk of it being sold or shared to insurance companies.
George Bush (junior) signed a law barring insurance companies from using DNA data for health insurance pricing etc.
I was surprised by this b/c my assumption was that insurance companies would want that and Republicans would push for it. The law passed 95-0 in the Senate though so this seems like, along with robocalls, something everyone is opposed to.
I think that still holds true for the most part, except that Democrats are also very much pro big business. The businesses they support aren't always the same though. Democrats are a lot more friendly to the entertainment industry than the fossil fuel industry for example.
Good to remind people that this law won't protect you from being discriminated against when it comes to life, disability, or long-term care insurance. It also didn't keep health insurers from discriminating against you for any genetic illnesses that you already had. It was just supposed to protect you in situations where your genes showed you were more likely to develop something. Today, discrimination due to preexisting conditions may be covered by other laws.
Today pretty much every baby born has their DNA taken and that can end up being used by law enforcement, but adults can try to avoid giving their DNA to the government, drug makers, and data brokers by not using services like Ancestry.com and 23andMe.
Yeah I don't see how this is going to be enforced. I think it's safe to say, unless you go to extraordinary lengths to ensure your genome data is safe, don't get it sequenced. A genome is forever. Like way beyond your own life. Your entire lineage and extended familys lineage.
Here's my genome: https://my.pgp-hms.org/profile/hu80855C
Let me know if you can actually find anything interesting- the last time it was analyzed the genetic counsellors said I had no known genetic risks.
Of course we are not ready yet to read the genome as if we know everything, but that's just a matter of time. You can't predict the environmental component of course but that still leaves 30-70% of every trait you have or will have be predictable. For perpetuity. And not just you, but your kids as well? What are the odds they'll not be living in a totalitarian state where it's perfectly okay to persecute them based on their genetics? Why would i put them at a disadvantage potentially by already publicizing half their genome?
Canada has an Office of the Privacy Commissioner whose job it is to actively promote privacy rights and respond to complaints about abuses: https://www.priv.gc.ca/en/about-the-opc/
Palfir genetics is a company I have used for delta-32 check and some other things. Ranges from $200 and upwards. They are located in Toronto. Their website has more details about what they offer and their privacy policy is detailed.
