It could also be labeled “self advocacy” with a light scientific oversight. Ie don’t do the same thing twice and expect different results, and detailed, intricate logs, etc. “Giving a crap” about your health is definitely not anti-science.
I’ve routinely had to do this with my own health. It was especially bad before Botox for migraine was around. Heard a lot of “men don’t get migraines, I don’t believe you” from neurologists.
For sleep apnea, it was an adverse reaction to a medication that led me to strongly request my doctor send me for a sleep study. Found out during the sleep study that I needed a good bit of air pressure and I’ve been benefiting greatly since. But it did take me doing some online research into side effects of the medication (from high quality sources), being insistent, and establishing some report with my doctor through logs, candor, and listening.
I agree and think it's interesting that we find a very similar article about finding a slow electrical leak in a car. Most of the experts are interested in taking the cream off the top of diagnosis, because most of the time you have the common condition that responds to the common treatment.
But when it's not and they have to look at a lot of details and spend a lot of time figuring out the problem many aren't interested, if only because they're pressed for time (by insurers) and trying to reduce cognitive load.
I’ve routinely had to do this with my own health. It was especially bad before Botox for migraine was around. Heard a lot of “men don’t get migraines, I don’t believe you” from neurologists.
For sleep apnea, it was an adverse reaction to a medication that led me to strongly request my doctor send me for a sleep study. Found out during the sleep study that I needed a good bit of air pressure and I’ve been benefiting greatly since. But it did take me doing some online research into side effects of the medication (from high quality sources), being insistent, and establishing some report with my doctor through logs, candor, and listening.