My two cents (as someone who also has a medical condition, albeit not as life threatening as yours, that is not taken seriously by many and who makes much of their living by writing) -
People don't necessarily believe what others say about their own medical condition. My doctors agree about mine, I have tangible measurable results, yet some people, both online and in real life, don't believe me. Getting spun up over that is not the most effective use of my time and energy and it may not be the best use of yours.
On getting paid, I do get paid enough to live on, but I have worked for hire and haven't put content in the internet and expected that it would get monetized. Maybe finding more ways to work for hire (which iirc you already do)? I don't know much about the Patreon model, but I checked a YouTuber I follow with a very large subscriber base as an example. His Patreon base is much smaller. If that is representative that might not be a good way to get a reliable income.
People don't necessarily believe what others say about their own medical condition. My doctors agree about mine, I have tangible measurable results, yet some people, both online and in real life, don't believe me. Getting spun up over that is not the most effective use of my time and energy and it may not be the best use of yours.
On getting paid, I do get paid enough to live on, but I have worked for hire and haven't put content in the internet and expected that it would get monetized. Maybe finding more ways to work for hire (which iirc you already do)? I don't know much about the Patreon model, but I checked a YouTuber I follow with a very large subscriber base as an example. His Patreon base is much smaller. If that is representative that might not be a good way to get a reliable income.