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The final quote raises the interesting question:

> Peter Bach, director for the center for health policy and outcomes at Memorial Sloan Kettering Cancer Center, is troubled by Zolgensma’s price and believes ICER’s updated cost-effectiveness analysis takes too many liberties.

> “You can look at this in either of two ways. It’s an amazing treatment and only a few kids will need it so a million here and million there is not worth more than shoulder shrug,” he said. “Or we have a big problem. Biopharma has been entirely redirected to rare diseases because the market will tolerate any price and the FDA will require pretty minimal data.”



That quote just states that some corporate board rooms have found a local maximum in the profit vs (time to market & R&D costs).

Pharma companies do not operate by any moral mandate but are only seeking profit.




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