I think another solution is forcing doctors to work more off of check lists and less following their gut.
When I was a baby I also had some weird symptoms and my mother took to be several pediatricians who couldn't identify the problem. Eventually one evening my mother ended up in the emergency room with me and got to see a really nervous young doctor who, as my mother describes it, it felt like we where the first patients he'd ever seen on his own. Anyway this 'kid' literally had a folder with lecture notes on his desk and worked through them step by step and ordered the right tests and nailed the diagnosis on his first try (which fortunately turned out to be nothing serious).
So as much as it's vital for parents to follow their gut, I feel like doctors often just follow their gut far too much and need to take a more rigorous approach to diagnostics.
Similar situation, our sick child was passed off by initial doctors as having something minor. We were fortunate to try a different ER where a nervous young doc took a more skeptical approach and ran down the checklist fully before correctly diagnosing with bacterial meningitis. The doctor had never even seen a meningitis case before.
Per discussions with the infectious disease specialists this timely diagnosis likely saved our child's life.
When I was a baby I also had some weird symptoms and my mother took to be several pediatricians who couldn't identify the problem. Eventually one evening my mother ended up in the emergency room with me and got to see a really nervous young doctor who, as my mother describes it, it felt like we where the first patients he'd ever seen on his own. Anyway this 'kid' literally had a folder with lecture notes on his desk and worked through them step by step and ordered the right tests and nailed the diagnosis on his first try (which fortunately turned out to be nothing serious).
So as much as it's vital for parents to follow their gut, I feel like doctors often just follow their gut far too much and need to take a more rigorous approach to diagnostics.