On: A gene therapy to treat a rare, inherited form of blindness will cost $850K

[woofyman]

>They would be in the same position as they were before

No they wouldn’t. They’d have the knowledge that there’s a cure and they can’t afford it. I can’t imagine how psychologically damaging that would be.

[TeMPOraL → woofyman]

> I can’t imagine how psychologically damaging that would be.

Probably very little, especially with reasonable hope that the treatment will become affordable over the next years. Also, it changes the situation from an impossible one to merely a practical problem of convincing other people to fund your treatment.

Regardless, curing some people and giving hope to others is strictly better than not curing anyone at all.

[candiodari → TeMPOraL]

In other words, for these patients, complaining loudly about it just went from "completely pointless" to "the most valuable activity I could ever do".

Now if we can only remember that detail when it inevitably makes the newspapers.