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I had a 3-year span where I could not eat gluten, and for 1 year of that I could not eat corn. My level of sensitivity was such that I could not eat gluten-free meals at any restaurant due to cross contamination nor drink instant coffee because the conveyors are sprayed with a corn-based anti-clumping solution.

I saw 3 different digestive specialists (I believe all gastrointestinologists, it's been a few years). Their approaches did nothing. Then I searched for digestive disease research centers, went to one, and was "cured" after two visits. The doctor said that my situation is becoming more prevalant, and that the issue is typically one or more of the following: A hostile bacteria in the digestive tract, overgrowth of one or more bacteria in the digestive tract, or a parasite.

A round of the following two drugs fixed me within a few days: Alinia and Neomycin. I was drinking beer and eating noodles again without any problems.

Now I have to take an antibiotic that targets the digestive tract every 1 - 1.5 years as symptoms return. This indicates that my problem is bacterial rather than parasitic, although the exact cause of my problem hasn't been identified.

An interesting side note: I traveled to Japan while affected by gluten (but before corn became problematic), and I ate in restaurants the whole trip with only one problem. I am certain that I was consuming small amounts of gluten with each meal. I learned that Japan and other countries have rejected US wheat shipments over certian GMOs, but I couldn't reliably explain why I was largely unaffected in Japan.




Just curious--do you still have your appendix? I read recently that it keeps a store of the microbiome and replenishes stores as needed.[1] Perhaps the nasty bacteria are hiding in there?

[1] http://dujs.dartmouth.edu/2008/04/a-bacterial-safe-house-a-n...


That is fascinating! Thank you for the information. It's certainly possible that bad bacteria are hiding in there.


There's no commercially available GMO wheat. Maybe Japan is rejecting them based on some conventional breeding factor/pesticide use but it's not because of GMOs.


It's not commercially available in the sense that you can't buy it because it's not approved, but it exists and contaminates existing crops regardless, and it will continue to do so.

--2013-- https://www.smithsonianmag.com/smart-news/where-will-japan-g...

--2016-- http://www.reuters.com/article/us-usa-wheat-gmo-japan/japan-...


miek, I'd really appreciate if you could contact me with more precise information (analysis you did, etc...).

I've been struggling with gluten sensitivity for 1.5yrs (been through the gastroenterologist circuit already, with 0 results) so your comment blew my mind.

Thank you! My email: chris [à] chris-hartwig.com


Hi, I had “gluten sensitivity” for maybe the last decade. Brain fog, fatigue etc. removing gluten helped but did not fix. Then I tried the ketogenic diet and all my problems went. Infact I feel better then I have ever in my life when in a state of ketosis. Not sure of the reason - It could be I’m cutting out a certain foods.. or it’s the anti inflammatory effects of ketone bodies? Still searching for answers on why. But for now it feels like I’ve been given a second chance at life.

I’d be happy to provide more details to you if your interested in trialing this path.


Not sure why you're being downvoted.

If there's one thing I've learned, when researching how diet can affect myself, it's that different humans react to different food types and intake, in different ways.

If a ketogenic diet works for you, the same diet may not work for others. Similarly, other types of diet may not work for you.

It's for that reason I decided to vote you up again - there is no reason to downvote what you posted.

One particularly enlightening book which changed my outlook on diet, raised an eyebrow, and just clicked with me, was "Eat Fat and Grow Slim", written in 1958 by Richard Mackarness, M.B.,B.S.


1958.. The more you dig into th history of nutrition the more you realise there was two parallel tracts. The one that won public opinion (low fat/high carb) has pretty much contributed to an epidemic. Recommend the book “the big fat surprise” by Nina Teicholz on the topic.


I've wondered if a keto diet could help, but if there's a chance antibiotics could fix the problem, I'll take that instead. My gluten intolerance appeared 1 week after a serious food poisoning, which could logically point to a bacterial/parasitic origin...

I also happen to have numerous food allergies, so the gastroenterologist thought "add gluten to the list".

If nothing else works, maybe I'll try a keto diet, but I love sugar... I'm already gluten free (I'm french, no bread), fruit free, raw veggies free, lactose free (I'm french, no cheese), olive free (I live in Spain!)... cutting sugar would be hard ;-)


> gluten intolerance appeared 1 week

A key fact! This type of information could really help a dietician assist finding a solution if you run out of avenues yourself. I said the same about loving sugar but funny enough the cravings / desire simply goes away once your body adapts to a new energy source (which is not glucose anymore). Having just recently been to Spain, the hardest part is eating out and missing out on all the great tapas!


Sure, I will send you an email this evening.


This is incredible. Could you explain what your symptoms were?

Thanks for sharing your story.


Of course. Symptoms: gas, bloating, diarrhea, constipation, mental slowness/fuzziness (I was always saying "sorry, I'm really out of it today"). Symptoms could last anywhere from 12-48 hours, and usually the onset of the symptoms was around 4-8 hours.


Did they do an actual test/sample before prescribing th medication or just take a guess?

Congratulations on escaping all those terrible symptoms!


Thank you! They guessed; they have seen this many times. They did other tests as well, and all came back negative. It was an "off-label" usage of the prescriptions, meaning that it is an unapproved treatment, so insurance didn't cover it. On that note, anyone purchasing medication should probably check sites like GoodRX.com before doing so, because it saved me a lot on those meds. Also, good pharmacists know several "discount codes" that they can type in at the register similar to those provided by GoodRx.. I don't know the proper terminology for this, but once you give them a code from GoodRX, you can say "do you know of any other good codes to try?" That worked for me.


Out of curiosity, which research center did you end up going to?


H.H. Chao Comprehensive Digestive Disease Center


Where did you go by any chance?


H.H. Chao Comprehensive Digestive Disease Center




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