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I was prescribed vit a palmitate, lutein, and DHA. The vit prescribed was a high dose, like 10k iu per day. I cut back on that dose, I'm going blind but I also need to consider my general health. I have ushers syndrome, not md, but it's a retinal disease (retinitis pigmentosa).

To be clear, this is prescribed as a "we can't do anything else for you" thing, since there is no cure for RP. This may or may not actually help.



Sorry to hear that. Given that it's genetic only something like Crispr could perhaps one day help.


They're also working on mRNA treatments, there is the LUNA study currently underway. Unfortunately I have a rare variant that isn't covered by this treatment. I'm hopeful but alas I live my life like treatment isn't coming because it's probably not.




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