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You're in the awkward position of explaining someone's experience to them. If someone who has been through something is telling you that something about the experience could be improved, there's a good chance they're right, or that they have some insight to offer over someone who has not.

We live in the bay area, we have managed to make appointments with several specialized doctors, including the department chair of obstetrics and gynecology at one of the large academic hospitals here (after much consternation with the nurses on the phone). They have told us that they do not know. She also told us that she's never really seen too many cases of sudden cardiac arrest in mid-pregnancy fetuses. She did not send us to anyone else -- believe me, my wife and I would hop on the opportunity to find another doctor with relevant experience.

You’re saying a thing doesn’t exist. I know people that specialize in that thing. That seems like a disagreement of facts; I don’t really see how that’s explaining your experience to you. Whether a medical speciality -exists- isn’t a subjective issue.

I’m gonna leave it at this: if you’re willing to take a trip, NYU has a dedicated repeat pregnancy loss center (Phone: 212-263-6359).

(And for what ever a strangers internet words are worth: I do earnestly hope that they or someone else succeeds in helping you.)

Can second this. I am acquainted with somebody who literally works in exactly this field over at Brigham and Women's here in Boston. It sounds like the experience 'tathougies describes really sucks--but I can attest that these people do exist and do do this work.

(I want to echo the good vibes here, too.)

Thank you, and I appreciate the contact.

Perhaps I haven't made my complaint clear. The doctors exist, but they aren't helpful.

We don't expect miracle answers, and realize medicine may not know, but it would be nice to have a dedicated clinic to work with you through it, or at least a doctor willing to establish a long-term relationship. I expect it would also help researchers formulate new hypotheses if they kept in contact with couples who are 'unexplained'.

We have been to three recurrent loss clinics at UCSF, Stanford, and the Mayo Clinic. There are doctors there who do research in this area, but if you don't have any of the limited number of conditions that they know about, they aren't helpful, nor are they willing to help you find clinical trials that may apply or willing to explore research with you or stick with you. I've read many brochures and websites that claim that the doctors will work with you to determine the cause of miscarriage, stillbirth, etc, but in our experience they work with you until they give up, then they don't want to see you anymore.

This is a bit different than other specialties. I don't have much experience with doctors, but I do have some older family members with chronic illnesses, a few with rare, unexplainable ones. In that situation, it's common for doctors to establish long-term relationships with patients and suggest clinical trials or research opportunities they can participate in. The approach seems different than what we've seen.

Once we're done with our next round of appointments, perhaps I'll call NYU. We have a few more appointments coming up with some more research doctors; hopefully, they will be more willing to keep track of our case.

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