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I understand that you think you are uniquely qualified and "have been on both sides." I also clearly understood you are defending the concept of actual diagnosis. At the same time your comments seemed to suggest that you had disdain for others who didn't manifest the condition in a way you thought was appropriate.

Please note that those of us who were born with this have a very different life experience, and greatly outnumber those who acquired the condition through a head trauma, infection or other acute condition. Women manifest very differently than men. For example, girls are way underdiagnosed relative to boys at approximately 10:1 though it is improving I hear lately to 3:1. Why? because hyperactivity in girls manifests often as over talkativeness, and instead of screening the girl for the condition, her parents and teachers shame her for "talking too much." I was one of those girls. Boys who talk too much rarely get that criticism but because ADHD leads me to act outside of gender norms, the backlash is far greater for girls than it is for boys in many, many cases.

ADHD also manifests very, very differently in many people due to the various ways executive function develops in children. I have no difficulty getting places on time, but some ADHD folks couldn't get anywhere on time without significantly more effort.

When you say hyperfocus is only used by those who want to sell you something, I question your veracity. Hyperfocus is listed, if not a symptom in the DSM, then as one possible manifestation/result of the condition that is commonly seen. Others can include emotional outbursts, driving accidents, drug abuse, etc. For clarity's sake of those reading: hyperfocus is defined as the inability to direct one's attention to what is desired; being drawn into something in an irresistible way in a way that impacts functioning. Hyperfocus can also manifest as being incapable of switching away from that which is undesired.

This means that while the presence of hyperfocus doesn't definitively diagnose ADHD, it is a common presentation.

I see one of the world's top specialists in the matter, an MD who is the head of the department at a major teaching hospital in the Bay Area. He is a scientist first and foremost, which is why I picked him. He's very clear and direct with me about what we know and what is unknown. I want you to understand that the presence of uncontrollable hyperfocus is absolutely a manifestation of the disorder that is very commonly seen.

Without apology I do take what you say personally, because you are talking about a condition I have lived with my whole life, that has affected nearly every corner of my life in ways that were surprising to me and to everyone around me from my parents to my closest friends. You have only had the condition in your adult years and most likely do not have the same form I have. So yes, I do resent any suggestion that there is one way to have this disorder.

Net: I'm explaining to you regardless of your intent, you are spreading misinformation that can be used against people with the condition to further perceptions that this is "made up" and thus the conditions to which we are legally entitled should be withheld.

So please, stop. You are qualified to speak of your own experience and should, but when you generalize to the rest of us, you are doing real harm.




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